One in 25 Australians are carriers of the defective cystic fibrosis gene. It is the most common life shortening genetic condition, slowly shutting down the airway, lungs and pancreas. Many people born today with cystic fibrosis will not live beyond their forties.
People living with cystic fibrosis can spend the equivalent of four months of full-time work each year receiving treatment. They take up to 80 pills a day, undergo tough physiotherapy regimes, are admitted to hospital several times a year and constantly cope with debilitating lung and gastrointestinal symptoms.
There are over one million carriers in Australia alone and most people are not even aware that they carry this life-shortening genetic condition. Cystic fibrosis is a degenerative condition that affects the lungs and digestive system. The treatment for cystic fibrosis is lifelong, ongoing and relentless.
As an organisation Cystic Fibrosis Queensland is the only not for profit charity providing advocacy, funding research and delivering support and services for the Queensland, Northern Territory and northern New South Wales cystic fibrosis community.
There is no designated State or Federal Government funding to support our cause. We rely heavily on the fundraising initiatives from partnerships with corporate and community.
2020 is Cystic Fibrosis Queensland's 60th anniversary and we are on a mission to provide all our members with nebulisers.
Your generous donation will allow us to continue to provide:
● Physical activities subsidies
● Trampolines for children
● In hospital programs such as meal subsidies and vouchers for adults, Boredom Buster Bags for children
● Free accommodation at Rose Cottage for cystic fibrosis families from rural, regional and remote areas
● Travel and hospital parking subsidies
● Medical loan equipment
● Hospital prescribed airway clearance equipment
● Newly diagnosed information kits for parents
● Information, education and psychosocial events, forums and expos
● Funding for research.
Joel Blackwell, Living with cystic fibrosis, QLD State vault gymnast, and B2B ambassador